At Supporting Our Youth & Adults Network, Inc. (SOYAN), we recognize the importance of protecting your personal information and are committed to processing it responsibly and in compliance with applicable data protection laws in places where SOYAN operates.
Why and How We Collect and Use Your Personal Information
Personal Information is any information that identifies you as an individual or relates to an identifiable individual. We collect the following Personal Information: first and last names, email address, zip code, phone number, year of birth, demographics, care coordination organization and fiscal intermediary used for OPWDD services and supports, I/DD status (or family member/caregiver/guardian or a supporter of the i/dd community, …).
We may collect your personal information for various purposes such as the following:
- Providing the functionality of services and fulfilling your requests.
We will engage in these activities to manage our contractual relationship with you and/or to comply with a legal obligation.
To provide services to you, such as arranging access to your account and providing related customer service.
To respond to your inquiries and fulfill your requests, such as when you send us questions, suggestions, compliments or complaints, or request a brochure or other information.
To complete your transactions and provide you with related customer service.
To send administrative information to you, such as changes to our terms, conditions, and policies.
To allow you to send messages to another person if you choose to do so, such as through an interactive forum.
- Providing you with our newsletter and other marketing and/or fundraising materials and facilitating social sharing.
To send you marketing and/or fundraising related emails or physical mail, with information about us and our products and services.
To facilitate social sharing functionality that you choose to use. We will engage in this activity with your consent or where we have a legitimate interest.
- Analysis of personal information for business reporting and providing personalized services and communications.
To analyze or predict our users’ preferences in order to prepare aggregated trend reports on how our digital content is used, so we can improve our services.
To better understand you, so that we can personalize our interactions with you and provide you with marketing, fundraising or other information tailored to you.
To better understand your preferences so that we can deliver content via our services that we believe will be relevant and interesting to you. We will provide personalized services, information and/or offers either with your consent or because we have a legitimate interest.
- Aggregating and/or anonymizing personal information.
We may aggregate and/or anonymize personal information so that it will no longer be considered personal information. We do so to generate data for our internal use, such as assessing quantitative demographics about our meeting participation.
- Facilitating volunteering or event participation.
To anticipate your presence and identify you when you participate in an event, volunteering opportunity, or a group.
- Accomplishing our business purposes.
For data analysis, for example, to improve the efficiency of our services;
For audits, to verify that our internal processes function as intended and are compliant with legal, regulatory, and/or contractual requirements;
For fraud and security monitoring purposes, for example, to detect and prevent cyberattacks or attempts to commit identity theft;
For developing new products and services;
For enhancing, improving, or modifying our current products and services;
For identifying usage trends, for example, understanding which parts of our services are of most interest to users;
For determining the effectiveness of our promotional and fundraising campaigns, so that we can adapt our campaigns to the needs and interests of our users; and
For operating and expanding our business activities, for example, understanding which parts of our services are of most interest to our users so we can focus our energies on meeting our users’ interests. We engage in these activities to manage our contractual relationship with you, to comply with a legal obligation, and/or because we have a legitimate interest.
Retention of Information
Information generally will be retained only for as long as necessary to fulfill the purposes for which the information was collected, or as otherwise required by law.
Information Security and Accuracy
We intend to protect your personal information and to maintain its accuracy. SOYAN implements reasonable electronic, personnel and physical measures to help us protect your personal information from loss, theft, alteration or misuse. However, please be advised that even the best security measures cannot fully eliminate all risks. We cannot guarantee that only authorized persons will view your information. We are not responsible for third-party circumvention of any privacy settings or security measures.
Opting Out of Communications from SOYAN
You may opt-out of receiving communications from SOYAN by following the unsubscribe process described in an email communication, or by contacting SOYAN in accordance with the “Contacting Us” section below.
How You Can Access, Change, or Delete Your Personal Information
If you would like to request to review, correct, or update personal information that you have previously provided to us, you may do so using the contact information in the section entitled “Contacting Us,” below. We will respond to your request consistent with applicable law.
In your request, please make clear what personal information you would like to have changed, whether you would like to have your personal information suppressed from our database, or otherwise let us know what limitations you would like to put on our use of your personal information. For your protection we may need to verify your identity before implementing your request. We will try to comply with your request as soon as reasonably practicable.
Please note that we may need to retain certain information for recordkeeping purposes and/or to complete any transactions that you began prior to requesting a change or deletion (e.g., when you make a purchase, you may not be able to change or delete the personal information provided until after the completion of the transaction).
Third Party Websites and Links
Please note that you may have cookies or other tracking technology placed on your computer by third party websites that refer you to the SOYAN website. Please review the privacy policies of each website you visit to better understand their privacy practices, including any third-party payment processors utilized by SOYAN. In addition, SOYAN would like to inform you that anytime you click on links (including advertising banners), which take you to third party websites, you will be subject to the third parties' privacy policies. While SOYAN supports the protection of your privacy on the Internet, SOYAN EXPRESSLY DISCLAIMS ANY AND ALL LIABILITY FOR THE ACTIONS OF THIRD PARTIES, INCLUDING BUT WITHOUT LIMITATION TO ACTIONS RELATING TO THE USE AND/OR DISCLOSURE OF PERSONAL INFORMATION BY THIRD PARTIES.
Sharing of Personal Information
SOYAN may receive personal information about you from third parties. For example, if you access our website through a third-party connection or log-in, such as Facebook® Connect, that third party may pass certain information about your use of its service to us. This information could include, but is not limited to, the user ID associated with your account, any information you have permitted the third party to share with us, and any information you have made public in connection with that service. We may receive non-personal information from you or third parties, including but not limited to information collected through cookies and other technologies, demographic information, and aggregated information. We may combine non-personal with your personal information, and when we do, we treat the combined information as personal information.
In addition to the examples listed above, SOYAN also uses third-party vendors to process your payment information when you choose to make a donation, purchase merchandise, or engage in any other legitimate financial transactions
SOYAN’s website is intended for general audiences and is not directed to children under the age of 13 years. SOYAN’s website does not knowingly collect personal information from children under 13. If you become aware that a child has provided us with personal information without parental consent, please contact us as described below. If we become aware that a child under 13 has provided us with personal information without parental consent, we will take steps to remove such information.
For minors of under the age of majority, SOYAN relies upon such parents or legal guardians to determine if the SOYAN website is appropriate for the viewing, access, or participation by such individuals under the age of majority. If an individual under the age of majority uses the website, such individual may only use the website under the supervision of a parent or legal guardian of majority age.
Aside from demographic data that is collected to maintain grants or for other legitimate purposes, we ask that you not send us, and you not disclose, any sensitive personal information (e.g., social security numbers, political opinions, religion or other beliefs, health, biometrics or genetic characteristics, or criminal background) on or through the website or otherwise to us.
Supporting Our Youth & Adults Network, Inc.
Address: PO Box 272, Freeport NY 11572